The Ontario government says it is improving access to specialized care for people living with rare diseases.
Health Minister Eric Hoskins has announced the opening of a new clinic for people with Ehlers-Danlos Syndrome and the expansion of clinics for those with inherited metabolic disorders and red blood cell disorders.
Hoskins says the provincial government is committing to providing the services and support that people with those rare diseases need.
He says Ontario is making an initial investment of $991,000 to support the launch of the EDS clinic and “annualized funding” in the years ahead. The clinic is run by the Hospital for Sick Children and the University Health Network in Toronto.
EDS is a group of inherited disorders that affect the connective tissue supporting many body parts. People with EDS are prone to chronic pain, joint dislocation and lost vision.
The other clinics that are being expanded are also in the University Health Network and will help patients with disorders such as Sickle Cell Disease, Thalassemia and Phenylketonuria.
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