The GPP Social Services spokesperson, Elena Bastidas, has announced today that her parliamentary group has presented a parliamentary initiative to approve the so-called ELA Law at the national level with the greatest possible urgency”.
Bastidas recalled that “this Law was left behind in the previous legislature and that is why it is important not to waste a minute. Once the new parliament is constituted, it is necessary to give the final push to this Law, which is so demanded and awaited by both ALS patients and their families”.
The GPP deputy has accused the “PSOE of being the cause of the blockade in the approval of the Law in the previous legislature” and urges the parliamentary group in Congress to “expedite, together with the PP, the approval of this Law so as not to continue playing with the hope of the sick
The social policy spokesperson stated that “from the PPCV we have already contacted our parliamentary group in Madrid to convey to them the importance of carrying out this initiative.”
“We are aware that ALS is a highly complex disease that requires the patient to receive permanent care and, therefore, it must be addressed comprehensively, beyond the healthcare field”, he assured.
In this sense, Bastidas has asserted that we are going to work together with the Consell to promote a specific study that evaluates the needs and problems that affect people with amyotrophic lateral sclerosis within the framework of social services and support systems and social inclusion of the Valencian generalitat”.
Bastidas has ensured that “it must be a priority objective of public administrations to carry out an evaluation of the impact of the Care Plan for people with amyotrophic lateral sclerosis”.
