Isabel Gemio has raised her voice to question the role of the political class in supporting families who care for dependent people, especially those affected by rare diseases. The well-known presenter has done so after her son Gustavo, who suffers from Duchenne muscular dystrophy, has been hospitalized for 20 days.
Gemio, who chairs a foundation focused on rare diseases, has shared his personal experience and has taken the opportunity to ask for more government support on Instagram. “It is inhuman that all responsibility falls on the family environment,” reflected the presenter, expressing her concern about the long waiting lists of those who seek to take advantage of the aid contemplated in the dependency law.
The social media post has highlighted a reality many families face: the daunting task of caring for a dependent loved one. According to Gemio, this is a challenge that goes beyond the emotional and physical, and also represents a great economic challenge due to the high health costs that many families cannot afford.
Something that seems very important to him, and that would be a great help, is that all families with someone dependent should have a personal assistant. In his words, this figure alleviates the burden of caring for a loved one with special needs for families. However, the cost of a personal assistant can be high and the waiting lists quite long.
That is why Gemio calls on the political class to address this problem, reduce waiting lists and increase accessibility to these personal assistance services for families with dependent members without money or time being an impediment.
In this way, Gemio has expressed his dissatisfaction with the political inaction regarding this matter, especially at a time when politicians are in the run-up to the electoral campaign. “I do not hear any politician talking about it, not even while on the electoral campaign. Nor that they are going to reduce the waiting lists of those who have requested aid from the dependency law,” he lamented.
