There are debates in life that do not admit of indifference. Quality healthcare is one thing, and dependency is another. Both go very well together. Spain is a reference country in both areas, but it is essential to maintain and improve quality services, and this is the responsibility of all governments. Citizens do not realize the extent to which it is necessary to invest in both parties until they need to be taken care of. That is why the demand of ALS patients, made visible these days by the exporter Juan Carlos Unzué and previously by many affected, such as Jordi Sabaté, deserves attention and, above all, action.
Unzué went to the Congress of Deputies yesterday and his speech immediately went viral. It was a devastating allegation. He leaned on the table. “The first thing I want to know is how many deputies are in the room”, he asked. “I counted five; I imagine that the rest will have something very important to do”, he added. In the room, with him, there was a group of ALS patients who had reached the hemicycle not without difficulties. “Do you know what it has cost many of my colleagues to be here?”, he asked. “I hope that, at the very least, they are watching us through the cameras or that, at least, this will be recorded and they will listen to us.” He claimed “empathy and will”.
These words of Unzué should stir consciences. Not just to those in charge of making laws, but to anyone. “Total support for all those affected by ALS, solution now!” demanded Luis Enrique, the PSG coach yesterday. ALS is one of the cruelest diseases and any help that society can give to those affected is little. The conclusion was unanimous yesterday on social networks.
The ALS patients, with Unzué at the head, but with hundreds of voices or simple glances, because they can no longer even speak, behind them, are asking for regulation accompanied by funding, which guarantees a dignified life for these people and their families The problem is there, all you need is will: “We are about 4,000 affected in Spain. Every day we lose three colleagues and another three are added”, Unzué explained to Foros de Vanguardia.
The football goalkeeper’s words should make the absent MPs and, by extension, society as a whole, reflect. They are asking for an ALS law and to be able to have a less hard day to day. The demand is fair.
